The aim of this project was to bypass the overwhelming wealth of diabetes information on the internet and create a central ‘hub’ of online expert information and advice to support young people with diabetes. The team built a website based on feedback from parents and carers of young patients to determine what was missing from existing sources. The site has information on living with diabetes, managing diabetes and dealing with illness. Feedback from parents and carers of children and young people has been overwhelmingly positive.
There’s an abundance of information about diabetes available on the internet. After talking to parents and carers of young people with diabetes the team ascertained that there was no ‘one stop’ source of information meeting the needs of this particular patient group. Parents and carers were visiting US websites such as JOSLIN as well as UK-based ones like NHS Choices and JDRF where they could find information, but had to ‘join the dots’ themselves. We did not seek to replicate the information already available, but to share the expertise within the award-winning paediatric diabetic team at University College London Hospital (UCLH) and to include the ‘best of the rest’ through syndicated copy (NHS Choices) and links to other useful organisations.
The objectives were to identify the following: what sort of information is currently available; where parents and carers of children with diabetes currently go to find out more information; and what was ‘missing’.
The team also wanted to create online content that meets the needs of parents and carers of children with diabetes, test the proposed concept with a group of expert parents and carers, and develop a ‘dynamic’ element to the website to encourage new and repeat visitors.
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