Investing in Children (IiC) is concerned with the human rights of children and
believes every child and young person should have a say in all matters affecting
them which should bring positive changes. In 2001 IiC started to work with
children and young people with type 1 diabetes in County Durham and Darlington
to have discussions about the care that they received. It became apparent that
the children, young people and parents IiC worked with appreciated the support
they got from each other – and monthly support group Type 1 Kidz was started in October
2012. With more funding, two further Type 1 Kidz groups were created across four paediatric
services: an over 14s 'T1ZY – Type 1 StudentZ & Youth' Group was developed, Simple Telehealth
text messaging was introduced and there has been continuous dialogue leading to changes within services.
The North East has the highest incidence of DKA in the UK with approximately 250 children and
young people being admitted to hospital every year for treatment, costing the local NHS £750,000
yearly. Many children and young people are not engaging with their care, resulting in more unplanned
hospital admissions and more potentially-avoidable short- and long-term complications.
Expanding T1KZ across the region to create an environment where children, young people
and families can support and learn from each other and improve their health outcomes. To
make significant long-lasting changes to Paediatric Diabetes Teams and to design Simple
Telehealth Pathways with children and young people for children and young people.
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