diabetes accounts for around 2% of diabetes (an estimated 40,000 NHS patients)
– but 80% of cases are misdiagnosed as having Type 1 or Type 2 diabetes. This
means they receive the wrong treatment. The team developed the national Genetic
Diabetes Nurse (GDN) educational initiative to train healthcare professionals
to recognise monogenic diabetes and to support them in managing patients with a
confirmed molecular genetic diagnosis. This initiative trains Diabetes
Specialist Nurses across the UK to disseminate new genetics knowledge and
improve diabetes care within their region, using a model of ‘training the
trainers’. Running since 2002, the model was recognised as an exemplar in the
DH White Paper ‘Our inheritance, our future’ for building genetics into
Monogenic diabetes accounts for around 2% of diabetes, which is an estimated 40,000 NHS patients. About 80% are misdiagnosed as having Type 1 or 2 diabetes and therefore receive the wrong treatment. A genetic diagnosis is important as it determines optimal treatment – but the majority of health care professionals have little training in genetics or genomic medicine. This means a mechanism for increasing recognition of monogenic diabetes is clearly needed to avoid misdiagnosis and inappropriate treatment.
To raise awareness of monogenic diabetes across the UK amongst health care professionals involved in diabetes care leading to improved recognition and treatment of these patients.
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