The intervention to improve overall metabolic control and reduce the daily burden of living with Type 1 diabetes was developed in collaboration with children, young people and families. It took the form of workshops covering: how insulin and food affect blood glucose, potential impact of long term high HbA1c, effects of low and high blood glucose on daily living, self-management techniques, and talking about diabetes with confidence. Preliminary results show a reduction in young people’s worries about diabetes, increased sharing of diabetes responsibility among families, and a decrease in hypoglycaemic episodes. Participants were enthusiastic and positive and would recommend the workshop. Parents were impressed hearing the level of knowledge their children had about diabetes. At the end of the groups a leaflet written by the young people was produced.
Evidence shows that 82% of 6-10 year olds and 86% of 11-16 year olds with type 1 diabetes in the UK fail to achieve a blood sugar target (HbA1c) of less than 7.5% (48 mmol/mol). Poor diabetes control can result in acute difficulties as well as long term complications.
To develop an acceptable and deliverable programme that is age-appropriate and addresses the needs of children and young people with T1DM and their parents. To collect data on potential screening measures using validated questionnaires.
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