This project is a co-production between commissioners and providers working with The South East Coast and London Paediatric Partnership parent group, part of the National Children and Young People’s (CYP) Diabetes Network. Its aims included sharing decision making during clinical consultations, involving patients in the design and commissioning of future health services and evaluating their care. The parent and CYP representatives group initiatives took in the creation of a closed, monitored Facebook group for parents, organising meetings for families to come together to share experiences and offer peer support and dissemination of surveys seeking parent views and information for parents. This has led to more knowledgeable, satisfied families who come together to offer support to other parents and feed back to providers of paediatric diabetes services.
The SEC and London Paediatric Diabetes Partnership represent the paediatric diabetes teams of the 46 NHS Hospitals in London and South East Coast, working together to improve paediatric diabetes care and share good practice. Prior to the network coming into existence there was evidence of variation in outcomes and consistency of care. Parents received differing information and did not always know who to approach for advice. Variation in outcomes was demonstrated by the National Paediatric Diabetes Audit and variation in care and consistency of advice was reported by parents on existing parent forums such as the Children with Diabetes email support group and at DUK support groups for parents.
To recruit 4 parent representatives to work with the SEC & London Partnership to offer co-produced solutions and seek feedback on service improvement initiatives and help improve outcomes for CYP with diabetes. To improve engagement with families. To facilitate a supportive environment.
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