My Diabetes My Way is the NHS Scotland interactive website for people with diabetes and their carers. It contains a variety of validated, tailored multimedia resources aimed at improving self-management, and provides users access to their clinical data, using information captured via the NHS Scotland shared electronic record. The system allows patients to become more active participants in their diabetes care and users have reported that it improves their knowledge, motivation, self-management, goal-setting and helps to act as an aide memoir for information discussed during consultations.
A recent report in Diabetic Medicine predicts NHS annual spending on diabetes will increase from £9.8 to £16.9 billion over the next 25 years (17 per cent of the entire NHS budget). NHS Scotland has recommended focusing on care that is quicker, more personal and delivered closer to home.
Diabetes in Scotland has increased from 103,835 (2 per cent) in 2002 to 247,278 (4.7 per cent) in 2011 and previously healthcare provision was organised around staff availability and infrequent clinic appointments. Using the internet and electronic personal health records (ePHRs) offers the potential to shift the balance of power to health care users and engage patients in managing their own health. Previously there have been no systems worldwide offering a fully population-based, focused ‘shared electronic record’ for diabetes.
My Diabetes My Way (MDMW) is the NHS Scotland interactive website for people with diabetes and their carers. It contains a variety of validated multimedia resources aimed at improving self-management. These include traditional information leaflets, interactive educational tools, videos describing diabetes-related complications and testimonials from people with diabetes talking about their experiences.
The project team designed a system to link MDMW to SCI-Diabetes data to allow patients access to their clinical information, from all relevant diabetes information sources.
This ePHR is available to every individual with diabetes in Scotland aged 16 or older.
It aimed to identify what expectations and benefits patients perceived and to then show that the new system would improve patient knowledge, motivation, self-management, goal setting and help to act as a reminder during clinical consultations. Finally, it aimed to show that access to an ePHR can have a positive effect on clinical outcomes, something not presently well understood within the peer-reviewed evidence-base.
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